Acid Sphingomyelinase Deficiency (ASMD) is a rare disease that limits and shortens the lives of children and adults. Breakthrough treatments can halt symptoms and reverse disease progression. Despite clear clinical benefits, many UK patients still cannot access these medicines, even though they are available in over 50 countries including France, Germany and Australia. Changing the way treatments like these are valued is the first step in giving UK patients with rare diseases a chance of an impr
0:15
Acid Sphingomyelinase Deficiency (ASMD) is a rare disease that limits and shortens the lives of children and adults. Breakthrough treatments can halt symptoms and reverse disease progression. Despite clear clinical benefits, many UK patients still cannot access these medicines, even though they are available in over 50 countries including France, Germany and Australia. Changing the way treatments like these are valued is the first step in giving UK patients with rare diseases a chance of an impr
23.8K views7 months ago
FacebookThe Association of the British Pharmaceutical I…
💜👨‍👩‍👧‍👦 Family's Rare Disease Journey Inspires Hope and Resilience 🌟 #raredisease #asmd
0:06
💜👨‍👩‍👧‍👦 Family's Rare Disease Journey Inspires Hope and Resilience 🌟 #raredisease #asmd
35.5K views1 month ago
YouTubeThe Daily Encore
🌈ASMR-TRFNDING🐕 WOW! MAD DOG'S FAVORITE EGG TART, DO NOT TOUCH #ASMD#asmrvideo #trending #maddog
0:21
🌈ASMR-TRFNDING🐕 WOW! MAD DOG'S FAVORITE EGG TART, DO NOT TOUCH #ASMD#asmrvideo #trending #maddog
27.5K views4 months ago
YouTubeLISA BUENA TV
🌈ASMD-TRENDING🐊 OMG! SCARY CROCODILE, DON'T GAKE HIS FOOD#trendingshorts #crocodiledentist #asmr
0:15
🌈ASMD-TRENDING🐊 OMG! SCARY CROCODILE, DON'T GAKE HIS FOOD#trendingshorts #crocodiledentist #asmr
2.7K views3 months ago
YouTubeLISA BUENA TV
ASMR MUKBANG RAP
0:10
ASMR MUKBANG RAP
22.6K views7 months ago
YouTubeThe ASMR Bro
Disease Quizzes -can you get all of them?. #quiz #disease #asmd #rarediseaseday #rarescience
0:56
Disease Quizzes -can you get all of them?. #quiz #disease #asmd #rarediseaseday #rarescience
430 views1 month ago
YouTubeMr. Greddy Quizzes
6th Grade ASMD Game
0:49
6th Grade ASMD Game
829 views3 months ago
YouTubeColégio Engler Abelhinha Feliz
1:14
#แสงธรรมร่มเย็น #travel #camping #cafe
1.2K views1 week ago
YouTubeAsMD
0:25
#คําคมชีวิต #แสงธรรมร่มเย็น #camping #food
484 views1 month ago
YouTubeAsMD
0:12
#shorts the way he looks at🥰 her | MME| shorts Korean love movie|#koreandrama
911 views1 month ago
YouTubeASMD
0:31
#ข้อคิดดีๆ #แสงธรรมร่มเย็น #camping #travel #wedding
835 views1 month ago
YouTubeAsMD
0:23
#คติเตือนใจ #แสงธรรมร่มเย็น #camping
920 views2 months ago
YouTubeAsMD
0:46
Understanding Rare Disease Parenting: A Guide for Caregivers
2.1M viewsAug 24, 2024
TikTokrare_mama
2:42
Peripheral Triggers ASMR: Relax and Unwind
784.8K views10 months ago
TikTokcalmbrainz
0:28
‏#وركاء👑🌷💔
1.1K views4 months ago
TikToka.asmd
1:16
ASMR Hair Brushing for Deep Sleep and Relaxation
168.3K viewsMar 29, 2025
TikTokzenheads_asmr
0:16
#YUTA:: maldito gege 💔#fyp #gojo #megumi #jujutsukaisen
39.5K views4 months ago
TikTokasmd_arix
0:09
Roman and his little sister, Stella, are living with a rare and terminal genetic disease called ASMD type A/B. We were told at the time of their diagnosis that there was no cure and that they most likely wouldn’t live past age three. We fought really hard to get them on a couple experimental treatments (one of which recently became the first FDA approved treatment for the more mild form of their condition!) that have drastically improved their quality of life (as well as extended it). The best p
193.2K viewsSep 19, 2024
TikTokrare_mama
0:58
Conoce ASMD: Síntomas y Significado
548.6K viewsJun 9, 2021
TikTokyouthpastorryan
0:23
Respeten gustos siporfa #fyp #yuta #gojo #megumi #factos
20.2K views4 months ago
TikTokasmd_arix
See more
Static thumbnail place holder