I spent years pushing my body as a swimmer — through college and even into my dream job as a Division I coach — without knowing I was battling cystic fibrosis all along.
The Clinical Specimen Resource Library is intended to facilitate sharing of patient-derived specimens and lab-derived resources managed outside of the CF Foundation. This is designed to be a ...
Growing up in an abusive environment, it was hard to speak up about the health issues I was experiencing. And even when I did, my symptoms were often dismissed by doctors. It wasn’t until my foster ...
When my newborn was diagnosed with cystic fibrosis, I was overwhelmed by a whirlwind of emotions — from grief and anger to love and hope.
In my early 20s, I only had a handful of medications and treatments that made up my daily cystic fibrosis regimen. Now, at 45 -- and a few years past the median predicted survival age -- I take ...
Food insecurity is a long-standing problem in America. According to the U.S. Department of Agriculture (USDA), food-insecure households are those with “limited or uncertain access to adequate food.” ...
Nosis Bio, an inaugural winner of the Foundation’s Golden Ticket Competition, receives funding to further explore design of novel ligands, which are specialized molecules that could help more precise ...
Trikafta® has done wonders for my health but not my waistline. I was relieved to find out, however, that I wasn't alone in my concern about my sudden weight gain and that bringing the topic up to my ...
Today, Vertex released positive preliminary clinical trial results for the potential triple-combination therapy VX-445 plus tezacaftor/ivacaftor (Symdeko®). Positive results were announced today from ...
This medicine represents the single greatest therapeutic advancement in the history of CF, offering a treatment for the underlying cause of the disease that could eventually benefit more than 90 ...
Dr. Steven Rowe will support mission to cure cystic fibrosis by leading the Foundation’s research strategy, focusing on genetic therapies BETHESDA, Md. -- Today, the Cystic Fibrosis Foundation ...