I spent years pushing my body as a swimmer — through college and even into my dream job as a Division I coach — without knowing I was battling cystic fibrosis all along.

When my newborn was diagnosed with cystic fibrosis, I was overwhelmed by a whirlwind of emotions — from grief and anger to love and hope.

There are moments when I look at my family, realize I’m middle aged, and remember all too well that my lungs have tried to kill me on more than one occasion. I’m a mom first, but living with cystic ...

BETHESDA, Md. (July 16, 2025) – Today, the Cystic Fibrosis Foundation announced an additional investment of up to $24 million in Prime Medicine to continue the development of a gene editing therapy ...

“He who does not know how to look back to where he came from will never get to his destination.” — Dr. José Rizal I was a 19-year-old Filipino American with cystic fibrosis when I recognized my duty ...

For many people, aging is an inevitable part of life, bringing with it the expected changes: wrinkles, slower metabolism, and the occasional creaky joint. But for those of us with cystic fibrosis, ...

Notice and comment process provides an invaluable platform for patients to share real world experiences, concerns, and implications of proposed rules issued by HHS. WASHINGTON, D.C. (March 6, 2025) — ...

I’ve been a sleepy gal my whole life. If given the option to watch a movie or take a nap, I’ll choose the nap almost every time. I’m very sleep dependent. I don’t operate well if I don’t get good ...

The additional funding will support a Phase 2 clinical trial for an inhaled antisense oligonucleotide drug for people with cystic fibrosis who have the splicing mutation 3849+10Kb C-to-T. BETHESDA, Md ...

“Okay, sit still,” I say as I am taking a leftover PICC line dressing and placing it on my little sister’s arm while she’s lying on the kitchen table. As a kid with cystic fibrosis, you pick up on the ...

Prime Medicine’s prime editing technology has the potential to bring genetic therapies to all people with cystic fibrosis, ultimately paving the way to a cure. BETHESDA, Md. — Today, the Cystic ...